Behold, the shitty cancer awareness memes are going round on Facebook once more. Spread awareness with a heart in your status, say people who have probably never actually had to talk to people with cancer.
Conversations are a bit strange when someone you love has terminal cancer - gawd knows what it's like for someone who HAS terminal cancer. Here's a guide on how to talk to me, but I am not representative.
1. Please don't ask how my mum is unless you want the answer.
There isn't going to be a "Yeah, she's fantastic" response. If you can't deal with being told "Same" or "worse", please don't ask. There are other things we can talk about (see point 3).
2. Please don't ask, with any degree of intensity, how I am REALLY.
I don't know how I am 99% of the time. Somewhere vaguely between euphoric she's still alive and devastated at the sheer fucking awfulness of everything. If I tell you I'm fine, it either means I don't want to talk about it, or I actually AM FINE, as BIZARRE as that might seen.
3. Cancer gets boring
You'd never have thought the idea of losing someone you adore would get dull. In the first week after Mum was diagnosed, I think I had to explain it in detail to about ten people who weren't directly affected. Not because they were being nosy; they just couldn't fathom how This Could Happen, so they wanted detail. Painstaking, surgical detail at times. Being me, I was happy to give it, but LORD IT IS HARD and then it just gets boring. This is what our new reality is, but I am still the same person and I don't just want to talk about the scary thing that's happening.
4. Please don't tell me about anyone you know (or knew) with cancer, unless it's a parent or similarly close relative.
Thanks for the info, but I guessed cancer wasn't solely restricting itself to hurting my mum. I've lost two grandparents, my best friend from when I was five, and numerous other people to cancer. I know millions of people are afflicted. I know it's shit. I know it's vicious. I know it's unpredictable. It's also not an exercise in comparison.
5. Please don't tell me about people who Miraculously Recovered.
This is so unlikely and rare that I just find it annoying rather than comforting.
6. If you don't know how to deal with it, that's fine.
Honestly. I get it. Watching sad adverts on the telly and donating to everyone on Facebook's Race For Life pages is one thing. Actually being faced with the reality is terrifying. Maybe people think I will just sob uncontrollably into their shoulder, or be cross they asked how I am, or I dunno, have a full on nervo. I don't expect answers. I don't expect to feel magically better any time soon. If you don't know how to deal with it (or me), it's probably not your job to so please don't worry about it.
7. I know you don't know what to say
Unthinkable though it seems, the shoe has been on the other foot. I've been told people are terminally ill before, and not had a clue what to say. What can you say? There's no Please Die Nicely cards in Clintons. I know it's shit. It's fine to say it's shit.
8. Please don't offer help unless you are willing to give it
I know you want to help, but there's a vast difference between saying "If there's anything I can do" and actually looking after my children for seven hours. If you can, offer specific help. Lifts. Food. Company. Babysitting. That sort of thing. Otherwise, please donate to Macmillan for us, because they offer so much practical support, and take away some of the fear.
9. Don't hate me or take it personally if I'm grumpy or quiet or reclusive or angry or anything other than shitting sunbeams
I can't predict my mood. On the day I wrote this, I cried because people were nice, cried because Christmas might be shit, cried because everything in the future might be shit, shouted at the kids, had perfectly polite conversations with strangers, jumped out of my skin because someone knocked on the door, cried some more, text people until I was too tired to, and shouted some more. I am also still capable of pissing myself laughing, being extremely dark humoured, and full of love for everyone around me. I'm still a contrary, argumentative bitch. Mum's illness is like a knife to my heart every time I remember it, but death is a massive part of the fabric of life.
I don't hate cancer. I'm not going to start sharing those "99% of people don't hate cancer but I know you're not one of them" memes on facebook. Cancer is a terrifying prospect: the word alone scares the shit out of many people, but it is also part of the joy of living. Cancer is a cellular disease that we all carry the potential to develop. Our cells divide at a rate of around 50 billion PER DAY. It is a miracle to me that it doesn't go wrong all the time. Cancer is as old as humanity. There are thousands of different types: some kill you, some barely bother you. It is shit that Mum's developed a lethal kind, but at the same time, in the lottery of life, I think (and she thinks) that she's done OK out of it. All this love for her, all these amazing memories that we continue to make, all these Actual People She Has Made. Half of me is my mum. In every one of the billions of cells in my body, half the DNA telling that cell what to do is my mum. And my mum WOULD tell every one of my cells what to do.
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